I want to welcome you to my blog. Feel free to subscribe. I think it will be worth your time - I plan on posting anything and everything relevant to Palindromic Rheumatism (PR), and by default Rheumatoid arthritis (RA). It's true that I am not a doctor (but as many of know, the doctors don't always know the extent of what we deal with or what's best for us anyway!), which is why I think that this will be unique - As I can led an ear, give some pointers on what has worked for me, and hopefully provide you with some ideas and support.
One of the most important aspects of this issue is how can we do our part to help scientists find out more about PR and perhaps one day find a cure. We all have been to the doctors countless times - before we got diagnosed, when they told us nothing was wrong or it was all in our head - and after our diagnosis when we started on a long road of consistent poking and prodding. Wouldn't it be great if more docs were familiar with PR? And wouldn't it be awesome if you could affect that?
Well, one of the best things you can do is educate yourself and those around you, including your doctors. Although there are not that many resources for those of us who suffer Palindromic Rheumatism, there are some resources available. I have provided some links to resources below, and hopefully this to will become a resource for you as post about my trial and errors in living and treating my PR. Cheers!
Informational:
http://en.wikipedia.org/wiki/Palindromic_rheumatism
http://www.palindromicrheumatism.org/
http://www.hopkins-arthritis.org/physician-corner/cme/rheumatology-rounds/palindromic_rheumround1.html
Forums/Social Networking:
http://www.palindromic.org/forum/
http://www.dailystrength.org/groups/palindromic-rheumatism
http://palindromicrheumatism.ning.com/
Blog Posts:
http://rawarrior.com/2009/06/what-is-palindromic-rheumatism/
http://rawarrior.com/2009/09/palindromic-rheumatism-is-not-a-rare-form-of-rheumatoid-arthritis/
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